Today I went to the craft supply shop for sewing machine needles. On arriving, I found a truck parked in the disability parks, no permit displayed. The driver was coming out of a new bed shop that was being set up. I asked him where his permit was... he didn't have one, he was just … Continue reading Mobility parking – it’s not there for your (in)convenience
I went to my ME support group meeting yesterday. I walked in and was greeted by another member: "Hi, how have you been? You look wrecked." "Thanks, I am." It's nice when someone notices.
I'm having a good day today. Days like today are dangerous. I woke up groggy but feeling ok. The sun was shining and the weather warming up. I've been sleeping better, making myself stick to a "normalish" day/night cycle. I have also been eating a little better lately, making a conscious effort to undo the … Continue reading The danger of feeling good
My husband was performing some music at our former school's spring fair. I knew I'd need to find something sedentary to entertain myself if the activity got to be too much, so I took my sketch kit... sure enough, I started to wilt. We made our circuit of the stalls in fits and starts before … Continue reading Artsing it Old Skool
I'm feeling almost "normal" today. The sun is shining, I got up early (for me) and stayed vertical for hours. I socialised, I helped move a wardrobe, I did laundry. I went out to buy gas for the bbq. I cooked dinner and cleaned up. I have to remind myself to be careful today because … Continue reading Feeling pleased with myself
Feeling low. I know my vit D dose is due tomorrow, so some of it will definitely relate to that. So tired. So anxious... Sad... Scared... Tired... Frustrated... Sick. Everything hurts. I can feel almost normal after sufficient rest, but doing something as little as sitting up and eating puts me back into ME mode … Continue reading I want my life back.
I've seen a lot of criticisms of the Konmari method of decluttering your life. Most of the criticisms I've read are either based on the idea that it's supposed to be one size fits all, that it suggests that everyone should be decluttering and living a minimalist lifestyle, or that throwing stuff away is bad … Continue reading How Mari Kondo’s system helped me grieve the life I lost
One of the major difficulties with managing ME, is the way our bodies deal with any form of stress. It can sometimes be hard to predict how much Post Exertional Malaise (PEM) will knock us out. For me, my symptoms are usually roughly predictable as the symptoms on day 3 will equate to the symptoms … Continue reading Kicking it old school: Payback is a b***h
Like yesterday, today was a beautiful spring day with glorious sunshine, very little wind, not too hot or too cold, and not a cloud in the sky. The last week has had a lot of those, so I'm making the most if it while I can... read: totally overdoing it while I feel ok. We … Continue reading Adding life content: happy father’s day
I was having a conversation recently about how isolating ME can be, especially for my severely ill friends, when the person I was speaking to said something that got me pondering: "Social media must have made life so much more connected for people who are unwell. I can't imagine the isolation prior to email, computers … Continue reading Virtual ME sanity