Time to say goodbye

We have to move out of our house. We received notice back in March and have until June 14th (we can leave sooner, if needed). I don't want to go. I love this house. I love the area. I love my room and my bath. I love the view from my bed, and the sunny … Continue reading Time to say goodbye

Under Pressure – finding better ways to monitor my body

This time last year I bought myself a fitness tracker watch with heart rate and blood pressure functions. I haven't compared the bp measure with a properly calibrated one yet, so the actual numbers may well be wrong (I know they're within the right ballpark though), but it is internally consistent, which is all I … Continue reading Under Pressure – finding better ways to monitor my body

The good news is it won’t* kill you. (*without help)

I want to address something that I've said a few times in the past (Here and here, and I touch on it here, for example) with isn't entirely 100% perfectly accurate. That ME/CFS won't kill you. Aside from the increases in suicide risk, there is a very small chance that with assistance/negligence from medical professionals … Continue reading The good news is it won’t* kill you. (*without help)

I lost all my friends when I got ME/CFS … except for the 300-odd who stuck around.

I keep seeing posts on social media from other people with ME/CFS talking about how this illness stole their friends. For most if us, not being able to go out to socialise means we lose our friends when we get sick, but I have had a very different experience. In February 2000, my friend Charlene … Continue reading I lost all my friends when I got ME/CFS … except for the 300-odd who stuck around.