Time to say goodbye

We have to move out of our house. We received notice back in March and have until June 14th (we can leave sooner, if needed). I don't want to go. I love this house. I love the area. I love my room and my bath. I love the view from my bed, and the sunny …

Feeling pleased with myself

I'm feeling almost "normal" today. The sun is shining, I got up early (for me) and stayed vertical for hours. I socialised, I helped move a wardrobe, I did laundry. I went out to buy gas for the bbq. I cooked dinner and cleaned up. I have to remind myself to be careful today because …

I want my life back.

Feeling low. I know my vit D dose is due tomorrow, so some of it will definitely relate to that. So tired. So anxious... Sad... Scared... Tired... Frustrated... Sick. Everything hurts. I can feel almost normal after sufficient rest, but doing something as little as sitting up and eating puts me back into ME mode …

Look at these overflowing cupboards… I have nothing to wear/eat, I tell you, absolutely nothing!

I really hate menu planning and eating on said plan. I can see the benefits, but I have never been a fan. When I was younger, and on the weight watchers points system I never used their weekly menus (although I liked some of their recipes), preferring to stick with my natural "what do I …

Spoon theory vs Energy Bucks

I have read many descriptions and metaphors to describe what it's like to live with an energy sapping chronic illness, but I find that none adequately describes what it’s like for me, living with ME/CFS. I have a metaphor that I think fits me and my ME which I wrote about in my epic post of …

Bujo isn’t just for soccer mums

For a while now I've been looking for ways to track my symptoms and triggers to try to better manage my illness. I've tried journals and apps and activity trackers but I always find that I either find it too hard to record everything or it becomes difficult to analyze my data to find any …