Covid-19 update

I haven't posted in a while. It's been a weird couple of months, and I just haven't had the brain space to form a coherent sentence. I'm not sure I have a coherent post to write today, but I want to address a couple of things - covid and ME/CFS (triggers, the future, and my … Continue reading Covid-19 update

August 8 – International Severe ME day and my ME heroes

I'm fortunate enough that my ME is currently only in the 'Moderate' range, meaning I can stand up on my own most of the time. I do sometimes use a walking aide/wheelchair as a way to manage my energy levels and prevent further deterioration, but I can usually stand and walk without assistance. I have … Continue reading August 8 – International Severe ME day and my ME heroes

Today was a good day, so why am I crying? AKA Show me the money!

Ok, I'm pretty tired, having reached my step limit today, but it's more than that...it's the millions missing, including myself, and our invisibility in the world of medical research. It all comes back to Florence Nightingale. For a few weeks the mere mention of Nightingale's name has been enough to set me off. Last week … Continue reading Today was a good day, so why am I crying? AKA Show me the money!