Tips, tricks, and life hacks for living with ME/CFS

I did a talk for my local support group. Here's a video of it. CW: discussion of suicide risk towards the end of the video. There may be other sensitive topics too, but I don't remember what I covered at the moment. I did a talk on tips, tricks, and life hacks for people with …

There’s a hole in my bucket, dear Liza, dear Liza: failures of mobility aides to give independence

I went to an accessibility expo today. It was a bunch of companies promoting mobility aides and other accessibility and disability related equipment and services. While I was there I started pondering something that keeps coming up when I look at accessibility generally, anId for mobility aides for myself... It's like the old woman who …

Look at these overflowing cupboards… I have nothing to wear/eat, I tell you, absolutely nothing!

I really hate menu planning and eating on said plan. I can see the benefits, but I have never been a fan. When I was younger, and on the weight watchers points system I never used their weekly menus (although I liked some of their recipes), preferring to stick with my natural "what do I …

So… My boob exploded. That was fun.

Take 1 bout of flu (substituting a cold may not work as well) Add 1 weekend on feet running a stand at an expo, Mix in a dash of terrorist attack and fear for Muslim friends. Mix well. Fold in an MMR vaccine and sprinkle with bronchitis. Allow to rest for 5 days, applying heat …

Bujo isn’t just for soccer mums

For a while now I've been looking for ways to track my symptoms and triggers to try to better manage my illness. I've tried journals and apps and activity trackers but I always find that I either find it too hard to record everything or it becomes difficult to analyze my data to find any …