I often ponder the potential evolutionary reasons for ME, and potential advantages it could have. • Maybe it exists simply because it doesn't kill its victims before they can breed, and/or because society evolved to care for the sick and the weak. That's just depressing and boring, so that can't be it. • Or we're … Continue reading Wrong place, wrong time, wrong reality
Author: Mia
Who am I now? Losing your identity to chronic illness
Chronically ill people are often criticised as "making their whole identity about their illness." Whether or not this is true, it's an unfair criticism, because so much of our identity gets stolen when we become sick. When I was healthy and able bodied, and even when I was sick but still working full time, I … Continue reading Who am I now? Losing your identity to chronic illness
Life, Death, and Library Books
It feels like I write about death a lot. I suppose it's because a Lorem Ipsum Life is a bit like dying. I lost everything and everyone I was when I got sick. Dealing with the grief of that 'death' is an important part of continuing to live. This morning I took a wee girl … Continue reading Life, Death, and Library Books
Tips, tricks, and life hacks for living with ME/CFS
I did a talk for my local support group. Here's a video of it. CW: discussion of suicide risk towards the end of the video. There may be other sensitive topics too, but I don't remember what I covered at the moment. I did a talk on tips, tricks, and life hacks for people with … Continue reading Tips, tricks, and life hacks for living with ME/CFS
I have Hipster Long Covid (I was doing it before it was cool), here’s my advice on how to avoid becoming like me
In March 2020 the scientist of the ME community predicted that Covid-19 would cause ME, a lifelong post-viral fatiguing illness, in a portion of those who recovered from infection. They estimated roughly 5-10%, based on SARS1, would struggle to return to pre-infection energy levels, and that many of these would never recover. It didn't take … Continue reading I have Hipster Long Covid (I was doing it before it was cool), here’s my advice on how to avoid becoming like me
Heads it wins, tails I lose
Am I depressed or flaring? I'm tired and can't get the energy to do anything. I feel sick. I have a headache. My stomach hurts. My mood is low and I'm having panic attacks and anxiety. I can't get to sleep but when I do I can't wake up. I want to cry but can't. … Continue reading Heads it wins, tails I lose
CFS vs ME, or something else entirely, or why names matter.
There is a lot of debate around the place about the naming of this condition from which I suffer and what is should be called. There is general agreement that Chronic Fatigue Syndrome (CFS) is an inappropriate and misleading name. Other names have been suggested by various groups, but there is yet to be an … Continue reading CFS vs ME, or something else entirely, or why names matter.
Mobility parking – it’s not there for your (in)convenience
Today I went to the craft supply shop for sewing machine needles. On arriving, I found a truck parked in the disability parks, no permit displayed. The driver was coming out of a new bed shop that was being set up. I asked him where his permit was... he didn't have one, he was just … Continue reading Mobility parking – it’s not there for your (in)convenience
Not a good day
I woke up craving a sweet, syrupy raspberry flavour with a very particular mouthfeel and sort of tingling on the lips... the liquid paracetamol I used to have as a child. I guess that means my body is hurting. I've been doing so well lately, my covid vaccination giving me a good 8 weeks of … Continue reading Not a good day
Reading for pleasure again: thank you, Chris, John, and Arthur.
As a child, I loved reading. I remember my first chapter book, received as a birthday or Christmas gift and read on busses to and from school, The Secret of Nym. I followed it up with Animal Farm, because it was about animals. I remember reserving The Neverending Story at the library and waiting months … Continue reading Reading for pleasure again: thank you, Chris, John, and Arthur.
You must be logged in to post a comment.