Like yesterday, today was a beautiful spring day with glorious sunshine, very little wind, not too hot or too cold, and not a cloud in the sky. The last week has had a lot of those, so I'm making the most if it while I can... read: totally overdoing it while I feel ok. We … Continue reading Adding life content: happy father’s day
I was having a conversation recently about how isolating ME can be, especially for my severely ill friends, when the person I was speaking to said something that got me pondering: "Social media must have made life so much more connected for people who are unwell. I can't imagine the isolation prior to email, computers … Continue reading Virtual ME sanity
I really hate menu planning and eating on said plan. I can see the benefits, but I have never been a fan. When I was younger, and on the weight watchers points system I never used their weekly menus (although I liked some of their recipes), preferring to stick with my natural "what do I … Continue reading Look at these overflowing cupboards… I have nothing to wear/eat, I tell you, absolutely nothing!
Yesterday I buried a friend, Lois. Well, I didn't literally bury her, I left that to other more able bodied people, but I was there when it happened. She died on Monday, both suddenly and not. She had cancer; an aggressive form of pancreatic cancer which was only diagnosed, at stage 4, earlier this year. … Continue reading Growing around my grief
Take 1 bout of flu (substituting a cold may not work as well) Add 1 weekend on feet running a stand at an expo, Mix in a dash of terrorist attack and fear for Muslim friends. Mix well. Fold in an MMR vaccine and sprinkle with bronchitis. Allow to rest for 5 days, applying heat … Continue reading So… My boob exploded. That was fun.
For about the last 6 to 12 months I've been feeling increasingly frustrated with my life and my space. Being bedridden so much of the time means I lie here staring at the contents of my bedroom. It has slowly dawned in me that my frustration and discomfort at being in my bed is not … Continue reading I’m gonna get my KonMari on.
Living with a chronic illness, such as ME/CFS, often feels like life is a placeholder without meaningful content. We're not really living a life, more just holding the space.